Work Packages

Lead: FH Europe; Contributors: All partners.

FH Europe will serve as the Project Coordinator (COO) and be responsible for overall project management including quality assurance and internal monitoring and evaluation. All beneficiaries will contribute to effective and efficient project management with WP leaders being members of the Project Management Team. All WP leaders will be members of the Project Management Team.

Lead: EuroScan; Contributors: FH Europe, UA-MoH

WP2’s main approach is to learn lessons from previous experience of the EU-recognized FH Paediatric Screening best practice and strengthen the evidence base on the return on investment and particularly on the social impact of FH Paediatric Screening. It aims to reinforce the evidence that support decisions around preventive measures and by building models that justify decisions from health care and societal perspectives in relation to FH Paediatric Screening.

Lead: CUT, InoMed; Contributor: FH Europe

WP3 will use a social and behavioural approach/tool in order to build and test a Personalised Communication Model (PCM). This model will be based on evidence from Cyprus and Romania (including the Roma population) and will provide an insight into the social, cultural and behavioural barriers and facilitators (individual and group level) that affect people’s health-related choices. The model (and its methodology) will be available to use not only for additional countries but also for additional prevention programmes. WP3 will include a capacity building element that will allow the amplification of the FH Europe Patient Ambassadors program.

Lead: EPHA

WP4 the findings of health determinants and barriers; and effective community-based mediation paths to develop a mediation approach for Romania and Cyprus, but with wider applicability in mind. WP4 will also build on synergies with WP3 for advocacy purposes.

Lead: FH Europe; Contributor: Bulgarian Patient Forum Federation (FBPF)

This WP will build on and exploit results coming out from other WPs for project visibility, awareness raising and policy advocacy. FH Europe will lead this WP, while the Bulgarian member patient organisation Bulgarian Patient Forum Federation (FBPF) will assist with piloting the activities in Bulgaria using national expertise and network with communications channels - TV, Radio, Newspapers (please see the Letter of Intent in Annex).